Long Beach Race for Rare 5K Run & Walk Event

🏃‍♂️ Event Overview

The National MPS Society will host a timed 5K run & walk event, beginning at 9 AM on Saturday, September 13. This event is to raise money and awareness to help change the lives of those living with a rare disease. 10% of Americans suffer from a rare disease and less than 5% have an FDA-approved treatment. 3 out of 10 children with a rare condition do not live to see their 5th birthday, and we work to change this. Proceeds benefit the National MPS Society.

🌍 Virtual Participation

• Choose your Location: It is just like any other 5K, except there is no official race location.
• Complete at Your Pace: You get to choose where, with whom, and even how you want to complete the 5K.
• Track Your Progress: By participating virtually, you can run the 5K at any time leading up to September 13th.
• Incremental Running: It can even be done in increments, keep track of your distance until you hit the 5K!

🤝 Sponsorship Opportunities

Contact Bethany Greene at bethany@mpssociety.org for sponsorship details and to receive your discount code.

• Platinum Corporate Sponsorship: $2,000 (Includes corporate name and logo on back of t-shirt, website recognition, banner at the event and up to 25 participants)
• Gold Corporate Sponsorship: $1,500 (Includes corporate name and logo on back of t-shirt, website recognition, small sign at the event and up to 20 participants)
• Team Sponsorship: $500 (Includes corporate name and logo on back of t-shirt, website recognition, and up to 10 participants)

👕 T-Shirt Information

In-person and virtual runners: Shirts guaranteed if you register by August 10th!

📅 Race Details

• 7:30 AM: Onsite registration and packet pick-up
• 9:00 AM: 5K Run/Walk
• 10:00 AM: Awards
• 10:30 AM: Beachside Picnic

Lunch is included in registration costs. Come out and enjoy a fun day to help raise awareness and funds for our MPS and ML families!

💡 Team Fundraiser

• Start Fundraising: At the top, hover over "Donate"
• Become a Fundraiser: Select "become a fundraiser"
• Create Your Page: Choose your photo, team name, bio and fundraising goal!
• Share the Link: Share the link for people to donate directly to your fundraiser!

🤲 Volunteer Opportunities

Please fill out this form and we will be in touch! Volunteer Form

🎗️ Support the Cause

All proceeds go to furthering the mission of the National MPS Society. FEIN: 11-2734849

For more information, visit the race page: Race for Rare 5K Run & Walk.