5K To Fight Histio

🌄 Race Overview

Join us for our 13th annual 5K to Fight Histio! This will be our 3rd year in the mountains of Colorado Springs, CO, but 13th year overall with the first 10 years being held in NY, NY. Together, we will conquer the trails to raise funds for ground-breaking research, to increase awareness of a disease that all too often goes misdiagnosed and provide support to each other as we fight Histiocytosis. This event brings Histio families from all over the globe together to continue our loved ones fight and make a difference for those that follow! COME OUT AND DO WHAT YOU LOVE TO DO AND SUPPORT A GREAT CAUSE DOING SO!

🩺 What Is HLH?

Hemophagocytic Lymphohistiocytosis (HLH) is a life-threatening immunodeficiency. It affects people of all ages and ethnic groups. Common symptoms include:

• Symptoms: Fevers, enlarged spleen, low blood counts, liver abnormalities.
• Inflammation: At least half of the patients with HLH will also experience inflammation of the brain, leading to a wide variety of neurologic problems.
• Forms: Divided into genetic forms (Familial HLH or FHLH) and acquired forms associated with infections, autoimmune conditions, or cancer.
• Incidence: HLH qualifies as an orphan or rare disease with little government funding for needed research.

🔬 What is Langerhans Cell Histiocytosis?

Langerhans cell histiocytosis (LCH) is a rare, cancer-like condition. It occurs when a person’s body produces too many immature Langerhans cells. Key points include:

• Cell Type: These cells are a type of immune cell known as histiocytes.
• Tissue Damage: An excess of these cells can lead to tumors or damage to tissue, bone, and organs.

❤️ About Liam's Lighthouse Foundation

This 5K is hosted by Liam's Lighthouse Foundation, a local (Colorado Springs) non-profit, tax-exempt organization. Our mission includes:

• Education: Create and provide educational material and awareness about Hemophagocytic Lymphohistiocytosis (HLH) and other Histiocytic Disorders.
• Support: Distributing unbiased, factual information to physicians, hospitals, and the community regarding this disease.
• Funding: Raise much-needed funds for continued education of physicians and research for safer treatment methods and ultimately a cure.
• Awareness: Promote the importance of becoming a blood and bone marrow donor within the community.

🌈 Liam’s Memory

Liam's Lighthouse Foundation was started in honor and memory of a local Colorado Springs boy, Liam Schulze. Please visit Liam's Story - LIAM'S LIGHTHOUSE FOUNDATION.

💖 Join The Cause

Every step taken and every dollar raised brings us closer to the ultimate finish line... A CURE! Funds raised go to support histio research, newly diagnosed patients and their families, and our local Ronald McDonald House of Colorado Springs!