Description: The Mathew Forbes Romer Foundation’s Mission is to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children’s genetic diseases of the brain.
Funding: MFRF has provided leadership and raised approximately $2.5 million for projects across three pillars: Research of Treatments and Cures, Education and Genetic Screening, and care through Nursing School Educational programs.
Progress: MFRF has celebrated wonderful progress in education, genetic testing, and gene therapy patient trials for many affected children and families.
Need for Support: There is so much more to do, including earlier detection and expanding treatment availability.
🏅 Get Involved
Event Purpose: On January 12th, 2025, we will run and walk to raise community awareness as well as much needed funds for this project.
Invitation: Come join us and be a part of the cure!
😴 The Sleep In Option
Support Option: This is for those who want to support the charity but can’t attend the actual event.
Mailing: Your shirt and finisher medal will be mailed to you!
Honor System: It’s the honor system to do the 5k at some point: time submission is not required.
Awards: This option is not eligible for awards.
👕 Shirts
Type: Shirts will be a Dry-Fit type shirt.
Registration Deadline: You must be registered by December 17th to be guaranteed the correct size tee shirt.
Registration Tip: Register EARLY to ensure your shirt size as we can’t guarantee availability afterwards.
🏆 Awards
Categorization: Awards will be given for M/F Overall, M/F under 10, 10-14, 15-19, and 10 year groups to 80+